National Familial Pancreas Tumor Registry

Who Can Participate in Our Study?

You can join the NFPTR if you or a family member has been diagnosed with a pancreatic tumor.

Participation involves the completion of a questionnaire about your health history and that of your family members.

After you complete your questionnaire and join the NFPTR, we input the data into a computer program that creates a family pedigree, much like the one displayed on the right. This pedigree helps us to keep track of the valuable family history information that you've provided to our registry.

As of July 1, 2008, 2,877 families have enrolled in the NFPTR. In 1,005 of these families have more than one close relative (i.e. parent/child or sibling pair) have been diagnosed with a pancreatic tumor and are therefore classified as familial. In 1,872 of these families, a single member of the family has been diagnosed with a panctreatic tumor. These families are vital to our research into pancreatic cancer and we are very appreciative for all of their assistance. If your family has been affected by pancreatic cancer, we would welcome your participation in our registry.

Click here for our questionnaire and more information on how to join the NFPTR.

If you or a family member has been diagnosed with a pancreatic tumor, you can join the NFPTR.