The Sol Goldman Pancreatic Cancer Research Center

The Johns Hopkins Hospital
1550 Orleans St., CRB II, Rm341
Baltimore, MD 21231
phone: 410.955.3512
fax: 410.614.0671

National Familial Pancreas Tumor Registry

How to Participate in the NFPTR

Request a Questionnaire

To join the registry, we ask that you or your family complete a brief questionnaire regarding your family's cancer history. (Request a questionnaire here or click the image on the right). At this time, the questionnaire can only be completed on paper by mail, but we are planning to have available a downloadable PDF file and an online version. Also, in selected cases, we may contact you to request the donation of a DNA sample for our research study. Click here to learn why we request blood or other DNA samples. We may also contact you if we have additional questions.

The NFPTR is protected by a Certificate of Confidentiality (NCI-01-062) from the National Institutes of Health, Department of Health and Human Services. This certificate helps us to protect the information that you provide to our registry.

If you do not qualify for or do not wish to join the registry and still would like to help our research, you can donate to the NFPTR.

Click here to learn more about our research.